To support thalassemia research, UNICO Delaware recently hosted a program at St. Edmond Church in Rehoboth Beach.
Thalassemia, also known as Cooley’s Anemia, is a disease that affects many people of Mediterranean heritage and other descent. It has been identified through years of research and support from donors across the nation. Usually discovered in children, the disease was the unknown cause of death, thought to be the result of heart or kidney failure, for many adolescents.
A symposium is held in Sussex County each year to educate members and friends about the necessity of continued research to confront the challenges of living with thalassemia and to find a cure.
Hematologist and oncologist Steven Stanzione, MD, presented an informative lecture on the disease, the history and progress of research, and the level of success which has been reached.
Ralph Colasanti of Newark, a representative and board member of the Thalassemia Foundation, was also present to provide information about ongoing research, some of which is being done at the University of Delaware. He also discussed the importance of donations and how funds are being used.
For more information or to donate to the Cooley’s Anemia Foundation, contact firstname.lastname@example.org.